Category Archives: Life After Loss

Disgruntled Rantings of a Member of the Worst Club Ever

Here’s the thing about being a member of the Infant Loss Club– it sucks. Joining is not a choice. No one wants to be here, and the entrance fee is incredibly steep.

Membership package includes:

  • A lifetime guarantee of ‘should haves’ and ‘what ifs’
  • Awkward silences from friends and acquaintances at the mere mention of your deceased child
  • Abrupt subject changes from others when you relate something to your loss
  • The plight of having to pretend you’re fine when you’re never fine
  • Burning jealousy of people who have normal things, for example: living children
  • Simmering rage and extreme sensitivity
  • A jaded view of the world
  • A potential reputation for being totally crazy
  • Inability to “get over it already”
  • Compromised relationships with people in various areas of your life
  • Constant disappointment
  • Frequent, unexpected triggers
  • Post-Traumatic Stress
  • Avoidance from people who used to talk to you
  • A heartache that never goes away
  • A warped body image
  • Allergic reactions to pregnancy announcements and newborn photos
  • Extreme irritation with society’s taboos on talking about infant loss
  • Discomfort in ordinary social situations
  • A penchant for being consistently misunderstood
  • Desire to isolate oneself from others
  • Acute anxiety
  • Phobia of grocery stores, home improvement stores, restaurants, or other random public places where there may be lots of babies
  • Insomnia
  • A kind of suffering you never imagined possible
  • Distaste for faith-based, godly advice that indicates your child is “in a better place”, their death is simply “part of god’s plan” or that “heaven needed another angel”
  • A low tolerance for BS
  • Overall hopelessness
  • A grief that is much bigger than you and completely unpredictable
  • A life sentence of being without your beloved child

…and much, much more!!

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I realize I’m coming across negatively right now, but come on, does anyone really think that there’s only good to be gained from the death of your child?? Does anyone really believe that?  Sometimes it needs to be acceptable for bereaved parents to shine a light on the ugliness that makes up the reality of infant loss. It’s hellish, and most of the time, it feels as if there’s absolutely nothing good to focus on, no matter how hard we want to. I honestly believe the ugly stuff needs to be acknowledged just as much as the strength and hope that eventually manifests from these situations. I can create a beautiful story from all of this… in fact, I don’t need to create it, because Lucy’s brief life IS a beautiful story. It holds a tragic, heart-wrenching, unfair ending, but it is still beautiful. What isn’t beautiful is the tendency of society to simply push the grief of the bereaved along merely because it doesn’t like sad things. Hurry up and grieve already, move forward, move on, live your life, inspire others, think positive, look for the beauty in the pain, share only goodness, don’t make us sad….  Heaven forbid anyone else should be uncomfortable for a few brief moments.

Though grief exists because there was first love, grief isn’t always beautiful.

Losing Lucy turned our world upside down; her death has impacted many people close to us. However, as time goes by, I continue to see so many bereaved parents’ broken hearts get swept under the rug by the people in their lives. The averted eyes, the uncomfortable shift of the energy in the room when it’s mentioned, the pure avoidance of the topic in general… it’s all a dismissal of that pain and experience. No, not every single moment of my life is defined by Lucy’s death, but much of it is. We’ve lost so much more than our baby, we’ve lost everything she might have been, and that continues to impact the very fabric of who we are every single day. I’m tired of feeling that my continuing grief is an inconvenience to others who can’t handle the truth. I’m not afraid to share it anymore, even if it makes someone else a little uncomfortable for a minute.

Am I like this all the time? No, truly I’m not. I do my best every day in this life after loss to be kind, to inspire others, to avoid causing anyone even the mildest discomfort, and to share the light and love that my Lucy left behind her. There is so much love, really there is. I see my blessings, I really do. Unfortunately, being authentic means that I end up sharing some of my pain and frustration sometimes because those things are part of my experience too, part of who I am. Even here, I am apologizing for being genuine about my grief. I’ve conditioned myself to do so, because even here, in MY space, I feel as though there’s something wrong with my expression of grief. This has to stop. Time to reveal the good, the bad, and the ugly. Time to be real.

 

Latest Still Standing Post

Here’s my latest post at Still Standing.

I really struggled with coming up with something I deemed “worthy” to write about for this article deadline. Like I’ve mentioned recently, not only was I struggling with writer’s block, but honestly, I also had nothing much to say. It seems that the writer’s block has since lifted. However, I’m frustrated because there’s never truly anything new to report these days. It’s always more of the same: sadness, frustration, jealousy, anger, disappointment, depression… not to imply that nothing good ever happens (it does), but never enough to balance those scales even a little bit. Chris and I are merely floating right now, and it gets old after awhile. Match all those feelings with job dissatisfaction, secondary infertility, and the holidays, and it’s the perfect recipe for the blahs. Things are just hard, and life’s a bummer right now. It’s been tough to be positive these days, as anyone who reads this blog knows. I haven’t exactly been an uplifting Miss Sunshine. How could I be? I really hate the holidays right now. It just feels like it’s another thing to fake my way through. I’m totally pissed off this season, and I miss Lucy so much; I miss everything that we’re missing, if that makes any sense. The Christmas thing just makes it even more glaringly obvious that life is so unfair… as if we needed another reminder.

Today, thankfully, is a snow day. One of the perks of being a teacher in the Midwest for sure. They’re magical mental health days for us, and they’re meant to be savored. I was joking with Chris earlier about how the only things that really seem to make us happy anymore are days in which we do not have to go to work! I was really feeling the need for a break from being Mrs. O. yesterday. I’m pretty much in the struggle zone all the time, fighting depression and heartache, and then to add to it, yesterday was the 11th, which is our 16 month milestone without Lucy here. I was really feeling the heaviness of it all. And then, to have a few students who act rudely, point out my mistakes (yes, I did accidentally skip #34 on the test numbering and went directly to #35, but it is not a tragedy), and then deal with the unbelievable neediness of the students (what is going on with that lately?! Holy cow)… I just felt like I was going to cave in. I can only put on the smiley face and be teacher/counselor/snack provider/ pseudo-parent/ listener/encourager/cheerleader/ energy giver/ paperwork guru/ “I Can Statement”-writing circus clown for so long. My job is hard, but especially hard when managing the anxiety, grief and depression that accompanies our situation. It makes it hard to be patient and paste on my fake happy face. I’m having a really hard time with it, and I’m not as good at being a teacher as I used to be. One more thing to add to the pile of guilt.  So- this Snow Day is so welcome in our world today.

The other day, I promised myself (and Lucy) that I’m going to start taking better care of myself and the things in my life. Back to exercising more regularly, being more aware of my needs and what my body needs, and practicing more gratitude. I’m also working on going a little easier on myself, because I’ve been pretty rough on her lately! Small steps. I can do this. I’ve been so frustrated with the stagnation in my life, and since I can’t change certain aspects of it, I need to work on the changes I can control.

 

 

It’s Not Easy Right Now

I’ve been having a hard time lately. We’ve been having a hard time lately. Coping with grief and dealing with disappointment on top of grief is so difficult. It’s hard for Chris and I to keep our chins up… we haven’t been dealing well with getting bad news each month. “More of the same” is a common phrase in our house, one we used to say in conjunction with the long winter parts of the school year (sort of like a “Groundhog’s Day” film reference, you know, the same day repeating over and over again…), but now, it’s used to describe our lives entirely. Only it isn’t funny anymore.

I’m starting to worry that there’s something wrong, starting to wonder if we’re not meant to have another pregnancy. I know, I know, I shouldn’t be thinking so “irrationally”, but the hope is running out. We’ve become conditioned to accept disappointment, and let’s face it, to expect the worst. It feels like I am completely out of control of everything in my life. I’m tired of feeling like I’m just a passenger on a runaway bus. From my job to my fertility (or lack thereof) to my sleeping habits to my entire life in general, I feel completely out of control. I don’t know how to feel better about any of it right now. I hate this existence. Grief touches all corners of my life, and it’s killed my motivation, my drive, my give-a-damn. I feel like a prisoner in my own life.

I miss Lucy, and lately, I feel so far away from her and that scares me. It’s hard to articulate how I’m feeling– I’ve had a serious case of writer’s block. I just don’t know how to say what I need to say. I barely made my deadline for writing my Still Standing article due out on the 12th, and even after finishing it, I am intensely self-conscious about it. I’ve been doubting myself, and I don’t know how to regain trust in myself. I am a lost soul these days.

I didn’t want to get out of bed this morning; my first thought was, “My life is legitimately a living hell”. I feel guilty for saying that, I do, but I just don’t know when it’s supposed to get better. I am so blessed in so many ways- I know this- but I am barely getting by. I thank my lucky stars daily for my husband… without him, I wouldn’t have survived this grief, no way. He’s been picking me up and pushing me through, loving me when I cannot love myself. I can’t imagine my life without him. I just wish I could be stronger for him so he wouldn’t have to carry so much of this burden. I keep trying to center my thoughts on how much I love Chris and Lucy, and it’s what makes me capable of surviving each day.

The holiday season is making things much more difficult… I can’t stand the idea of another Christmas without Lucy, but I have no choice but to deal with it. We did get a tree for her again; I love sitting in the glow of the tree lights, thinking of her. Mostly, I try to imagine all of the memories we should be making now.

But mostly, I’m just sad.

Happy Thanksgiving, Or Something Like That…

It’s not that I’m not thankful. I am thankful for so many things. I could list the many things I’m grateful for, but there’s one thing missing from that list: I am thankful for my happy, thriving, beautiful living daughter. I don’t get to put that one on my list, and honestly, it’s still hard to see past that.

I don’t mean to seem bitter or unappreciative, but I simply can’t help but feel surly and grouchy now that the holidays have arrived. I have been dreading this time of year, and honestly can’t wait for it to be over with. The biggest perk for me is the time off work. There won’t be any happy, holly jolly merriment for me. I realize it’s been a long while since Lucy died, and that the vast majority might wonder why I can’t just set my grief aside and be present in all things wonderful, but I just can’t.

I made a big mistake around this time last year. I dared to imagine things would be different this year for the holiday season. I thought for sure that by now we’d be pregnant again, looking toward the future with hope and optimism. I was wrong. I don’t say things like that anymore, either aloud or to myself. Things are exactly the same, and the disappointment is tangible. The longing, sadness, and depression is still as real now as it was a year ago. I miss Lucy as much now as I ever have. It’s too painful to even try imagining what this day should be like with her here; but, I suppose it’s no different than any other day. And I’ve survived all of those days, just as I will today.

I miss my Lucy. And, even though I’m sad, I’ll always be thankful that she is ours and we are hers.

Lucy Bear

Today, I am thankful for Molly Bears. Molly Bears is an organization I cannot say enough about. Molly Christine, an perfect little angel who passed on May 30, 2010, inspired her family to create the Molly Bears to help provide comfort to other families who’ve lost their precious angels as well. They create weighted teddy bears and send them to families with empty arms in need of cuddles. Each one is unique and handcrafted with loving care. Please check out their site at www.mollybears.org and consider donating to this cause.

We received our Lucy Bear today, on a day that she was very much needed. I opened the box, and immediately felt comforted by the sight of this sweet bear. I pulled her out of the box, and I couldn’t believe for a moment how heavy she was… somehow, in the past 14+ months, I’d forgotten how the sweet weight of Lucy felt in my arms as I met her for the first time and prepared to say good-bye. I felt close to my baby suddenly; I remembered those moments holding her as if they’d happened only yesterday.

Feeling this again, there’s no denying that our beautiful girl was so big and healthy when she was born. I’d give anything to have her back here, healthy and thriving. But since this is our reality, I’m thankful at least to have this beautiful bear as a reminder of her, of my precious baby daughter.

The Truth Of It…

Things aren’t great. I sat in my living room on October 15, which is Infant Loss Remembrance Day, and I realized something. Not only did it hurt just as much fourteen months into the journey as it had two months in, but there I was: in exactly the same spot on the same couch in the same room, looking at the same candle flickering its memorial flame, on the same date at the same time… and NOTHING HAS CHANGED. Nothing has changed since losing Lucy over a year ago. I can’t let go, I can’t adapt.

More than 14 months in and here’s the REAL truth of it all…

It still hurts now as much as it did one year ago.

I can’t even remember most of the past year; so much of it is a blur.

There isn’t a morning that dawns when I actually want to get out of bed. Facing the day means facing the truth. And no matter how much time passes, it’s still just as hard today to face the fact that our child died.

I am irritated by everyone else’s happiness. It just makes my own misery so much more visible to me.

It’s hard to see little children, both in real life and in photos, because I can only wonder what our child should look like at that age.

My job is absolutely draining the life out of me. My patience for the rudeness and complaining of my students has dwindled, and I am weary of trying to parent other peoples’ children (when all I really want is to parent my own child). I feel as if I am failing with every action I take in my teaching role, and that I am letting down all of the students that truly want to be in my classroom. I am simply not the sweet Mrs. O. that I used to be. How could I be??

Sometimes, I simply have nothing positive to say.

I really don’t want to talk to anyone lately. I have become a hermit and a recluse, and that’s how I want to be. The idea of even picking up the phone to call family and friends causes me an unnatural amount of anxiety, and once again… I have nothing to say. What would me calling someone do other than depress them?

With every month that passes, I am losing more hope. Hope that things will ever be different or better than they are now. I can’t think of much to look forward to. With every month that passes and we see no rainbow, I lose more and more of my faith in the idea that it will ever be better.

I am having a hard time coping. I take sleep aids every night. I drink too much. I don’t know if it’s going to get better.

I feel like a freak most of the time, some grief monster that no one understands. How can it have been this long, and I’m still not “better”? There is no “better” in a grief like this.

The one thing we want is to give Lucy a sibling, and I’ve made such a mess of myself that I’d be surprised if it ever happens.

The truth is, life is hard right now. I can’t always see the light. I can’t always think positively.

Sometimes, I do wish I could just disappear.

I know I have let my baby daughter down so much by living like this. Grief has turned my life upside down… turned me into someone I don’t recognize or even like at all. I am lost, and I don’t know if I will ever find my way again.

It’s hideous, but here it is… the truth.

Sunrise Blessing

October is Infant and Pregnancy Awareness Month. This year, I’m going to do my best to participate daily in the Capture Your Grief Project. There may be a few days here and there I might miss, but I’ll try to stay caught up. The Capture Your Grief Project is a series of photo prompts, one for each day in October. Last year, I just couldn’t finish it… the grief was still too fresh, too new, for me to do all of it. I’ll still give myself an out if I need it, because as a loss mom, I never really know just how something might impact me until it’s already happening. So, here’s Day 1…..

Day 1: Sunrise Blessing
As the early morning sunlight streams through the trees, illuminating the leaves in greens and yellows, I see that it also gently shines through the hearts hung in honor of my Lucy. I feel closest to her in these quiet few minutes after I awake, listening to my own heartbeat, as the sun casts its light, her light, over everything. Just like the sun, my sweet baby’s light touches everything, guiding me through the day.
#captureyourgrief2017 #whathealsyou #lucyroseslight #infantloss #babylossawareness

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Today’s a good day for me to focus on blessings of ANY kind, because I’ve truly felt like a lost, tired, sad soul this week. Sometimes, the blessings are hard to focus on when it feels as if the universe is trying its best to prevent Chris and me from being happy. It’s so difficult sometimes, and no matter what I do, I just can’t seem to shake the feeling that things are never going to change for the better. Whenever we get to a point that appears to hold hope and promise of new joy, it’s snatched out from under us.

In my family, it’s been a rough week because my Grandma has been ill and in the hospital. One of the blessings I can count is that she’s still here, and has been discharged from the hospital and is getting settled back in at home. BIG blessing!

Unfortunately, the “non-blessings” have been coming in abundance, lately, or so it seems. We spent two days in our house this week thinking that we might be pregnant again. We cautiously embraced the idea, knowing full well that nothing is ever guaranteed, but the possibility was so beautiful, just the same. I believe I may have had another chemical pregnancy, which of course, feels like a swift kick in the gut. Things like this are so hard to bounce right back from, and it feels like we’re being punished with disappointment again and again. So often, I want to ask ‘why?’, but then I know there simply is no reason. After how easily we ended up pregnant with our Lucy, this secondary infertility is perplexing. We’re deciding on our next steps and going from there. We so badly want Lucy to have a little sibling, but it just isn’t happening yet. It continuously adds more dimensions to our grief, and it gets more and more difficult to feel optimistic about anything. Everything is an uphill climb, and nothing comes easily for us lately. I’m hoping to start seeing more blessings in our lives, so I’m doing my best to intentionally look for them. The light is always there, it’s just hard to see sometimes.

Sometimes, It’s Just Too Real.

Sometimes, out of nowhere, it hits me all over again with renewed intensity. Our baby died. She died. And nothing can bring her back to us.

Sometimes, I see photos of other parents who got to keep their babies, and I feel gutted. The first birthday photos. The snuggles. The messy, smiling faces. Shining eyes after a day full of play. The contentment on the mommy and daddy’s faces. Joy. Normalcy. Happiness. None of which my husband and I were allowed to have.

Sometimes, the anger makes me shake. My joy was stolen from me, ripped away with wretched, evil claws. My body tenses up with sorrow and the relentless tearing of my heart makes me want to smash everything that can be broken. Even though it is me that is broken, shattered, shredded.

Sometimes, I wish I were anywhere but here. I want to fly away and never look back. I long for a comfort I can never, ever have. All that’s left are the scattered remains of who I once was, and I’m burdened with the impossible task of trying to piece them back together. It isn’t working, there are too many missing fragments.

Sometimes, I can’t believe this nightmare is my life. Yet I am expected to go on as if nothing ever happened. I’m forced to accept that those wasted dreams, the happy life that was almost within my reach, were never mine to have.

Sometimes, like right now, the pain is just too real.